Thesis: Beyond the Clinic: Living with Neurofibromatosis Type 1
Research: My research explores the everyday lives of people with the genetic condition neurofibromatosis type 1 (NF1). My focus is on biosocial groups – including support communities and NF1 activist networks. I am interested in participants’ aspirations for themselves and for their groups, their enactment of community, the significance (or lack thereof) they give to genes, and their cultivation of identity. Building on existing ethnographic research into Americans living with NF1, my work seeks to attend to the emerging role of online communities, while also drawing on new theoretical insights from the anthropology of ethics.
Research interests: medical genetics, stigma, biosociality, bioethics, digital ethnography, the anthropology of ethics.
MA in Bioethics, Emory University (2018)
MA in Social Anthropology, University of St Andrews (2017)